About
I believe that as a MRKH woman myself, that we should have peer support available to us in Canada (and around the world). So I’m starting here to try and reach out to all of you who know what it means to be an MRKH woman. Be brave. Share your experiences as I share mine.
Note: If you have any questions, please let me know! I have created this blog with the support of Dr. Nathalie Fleming and Dr. Amanda Black at CHEO Hospital in Ottawa. If there are any questions that I cannot answer, I will be sure to forward those questions to them.
Also, if you do not feel comfortable commenting here or if you have any ideas you would like to share with me (to help me improve this resource), please email me at mrkhcanada@gmail.com.
Aysha said,
February 20, 2010 at 8:41 pm
You sounds like an intellegent lady. Intially I was thinking to do pyschology but I am doing health and social care and in university too. Do you think you may become a psychologist and work with MRKH ladies?
I agree I am from UK though. But I believe support for MRKH is vital world wide!
MRKHCanada said,
February 21, 2010 at 5:11 am
Thank you, Aysha! I would love to counsel not only MRKH women but also others with conditions similar to ourselves (I recently recieved interest from an AIS woman so I would be open to learning about other conditions that constitute congenital abnormalities of the female reproductive tract…we can learn from each other!). I think we can find a way to provide a community for those with or without support and I believe support is absolutely crucial!!!
Maria Krasinski said,
March 30, 2010 at 6:57 pm
I’m a CAH gal who had infant surgery on my externals (that was bad enough) but thankfully they left my internals alone. I’m stenotic, but i’ve discovered i am much less so after a few years of cortisol analogue therapy. Makes sense. Adrenals now supressed, do not any longer supress my ovaries… so there finally making enough estrogen for me to “stretch”. All those years called a “baby” for finding sex painful. Now, if you know a CAH gal, you know that “baby” does not exactly fit as a description of us
….. though apparently, my body (if not my mind) needed some outside help to mature. Anyway, I found Esther’s Video inspiring, and hope that i can be a useful part of the conversation. 
MRKHCanada said,
April 1, 2010 at 4:19 pm
Thank you for sharing your story, Maria! I would love for you to keep in touch. This site isn’t exclusively for MRKH girls because I think we all have things to learn from each other!!! Much love to you!
Aysha said,
February 21, 2010 at 3:45 pm
Oh wonderful idea! I have read stories of Ais, Cah etc women. Having support and a good counsellor can make a world of difference! It can help make coping easier! Good luck I can sense you would make an amazing counsellor and make a difference to the lives of many!
Aysha said,
February 21, 2010 at 6:01 pm
Wow Drs helped you..thats amazing! Are they your Drs are they specilist in MRKH and similar things? x
MRKHCanada said,
February 26, 2010 at 7:02 pm
Aww thats so nice of you to say! Honestly, I think it would be wonderful to all learn from each other and to bring together a community where we can be open about our conditions without fearing judgement!
Yes, they are totally supportive of my ideas! They do specialize in MRKH and other conditions so their experience is crucial to us! I think anyways.
Miss-Smiley said,
February 27, 2010 at 12:37 am
I agree with you..well said!
Miss-Smiley said,
February 27, 2010 at 9:20 pm
Email me I do not know were I put your email!
Miss-Smiley said,
April 7, 2010 at 9:50 pm
Thanks Maria for sharing your story I just read it. =D
vgirl29 said,
April 20, 2010 at 2:16 pm
I’ve just found your blog when I was searching for entries realting to dilators. I have vaginismus and I’m finding it hard. I’d never heard of any of the above syndromes until I read about them here and then researched them. You are all very brave and inspirational to be sharing your knowledge and supporting each other! Reading other people’s blogs & writing my own is helping me get through this.
MRKHCanada said,
April 21, 2010 at 11:59 am
I am so glad that you stumbled upon this blog and found it helpful! You are very welcome to comment!
Miss-Smiley said,
May 9, 2010 at 9:13 am
vgirl29- Thank you for your nice remarks. I also did not know about MRKH until I was diagnosed! And it is the same story for most. I am glad you found this blog helpful as MRKHCanada said do get posting! I have read about vaginismus, good luck with coping and dealing with that.
Rose said,
July 23, 2010 at 12:11 am
Absolutely love this site. I am a MRKH girl, and wanted some information that went beyond basic description. Thank you for all the time and effort you’ve put into this.
MRKHCanada said,
August 3, 2010 at 10:30 am
Thank you Rose! Im so glad you find the site helpful!!! Much love to you and keep visiting!
sunitha said,
October 6, 2010 at 11:38 am
hai i am an MRKH girl,i am indian i found this site helpful can u mail me, i havnt undergone surgery yet, i want to marry and lead a normal life is it possible for me?
MRKHCanada said,
October 6, 2010 at 5:55 pm
Absolutely! It is possible for you! You deserve all those things. My email is MRKHCanada@gmail.com but I’ll email you because I would love to talk some more with you!
julie said,
December 9, 2010 at 1:53 am
I just found this site and I am so, so, so relieved and happy to find a more personal perspective. It’s been frustrating trying to find anything on MRKH that’s updated regularly and that isn’t sheer medical terminology. I was sort of diagnosed about 5 or 6 years ago, but never did any medical follow-up for a number of reasons (fear, the lab lost a bunch of y bloodwork and I was too nervous to go back, etc. etc.). So now I’m 23 trying to figure out where to even BEGIN dealing with MRKH and all the interrelated challenges it has created for me (a chronic fear of relationships, for one, haha). Luckily I live in TO and should have some good resources at my disposal if I ever get the nerve up to go and deal with it.
I will definitely be following your posts and would love to share more of my story… at some point.
MRKHCanada said,
December 10, 2010 at 5:31 pm
Glad that you have benefitted from my blog, Julie! Please feel free to share your story and/or make comments!
Thomas Lundmark said,
March 11, 2011 at 5:04 am
Thought you might like to know that Eva Braun suffered from MRKH, as I am sure a lot of prominent women have and do. More on the subject of Eva Braun can be found in my new biography ‘The Untold Story of Eva Braun’.
Betsy Hall said,
June 20, 2011 at 8:43 pm
This is a GREAT resource!!! What a wonderful site! I just created an MRKH support and awareness page on facebook and I was wondering if I could add this blog as one of the links to reference on my page? This really is an awesome site! Thank you for creating this page so that others can find support when they need it most! <3
MRKHCanada said,
June 22, 2011 at 1:58 am
THANK YOU!!! Absolutely – share are much as you want!!! That’s what this site is here for!!! Thanks for creating the MRKH group on facebook! <3
Rachel said,
April 15, 2012 at 12:44 pm
I was diagnosed with MRKH last year. I was 17 and hadn’t had my period yet and the doctor came in and asked me to have testing. 6 months of Ultrasounds, blood work, and an MRI later she told me I didn’t have a uterus. Which really, at 17, didn’t bother me. But women with MRKH don’t really have a vagina either. “Vaginal dimple,” they say, “2-7 centimetres”. Which is really not something a girl who has a boyfriend and wants to go to university wants to hear. So I went to Toronto to visit a MRKH specialist, Dr. Blake at Sunnybrook in Toronto. Dr. Blake used to work at Sick Kids and has seen actual cases of MRKH before. My main concern was, as I mentioned, the whole lack of vagina thing. Really there are only three options open (that I’ve found) for women with this problem; surgery, dilating, or just leave it be and never really have sex. Now Dr. Blake, with all her experience, recommended the dilating.
The plan is for me to start this next week and I am honestly…afraid. I’m 18 years old and it … HURTS when I try to put my finger in my vagina. It’s all very discouraging.
Do you have any advice?
MRKHCanada said,
May 1, 2012 at 2:02 pm
My advice is go slow. When I was first diagnosed all I wanted to feel was what it was like to be normal so I did everything I could to push myself. Maybe a bit too hard sometimes. I tried to deal with the physical before the emotional – just because I think that was easier for me. I thought maybe if I can reach 10 cm I’ll feel normal. I’d say it helped but it definitely wasn’t the complete answer. Ask yourself: are you ready to have sex? If the answer is yes, try dilating. Go at your own pace and push only as hard as you feel comfortable doing! Use lots of lubrication and try and find a spot that relaxes you and provides privacy – this will help you in the long run. Hope this helps!
Rachel said,
April 17, 2012 at 4:23 pm
I was diagnosed with MRKH last year. I was 17 and hadn’t had my period yet and the doctor came in and asked me to have testing. 6 months of Ultrasounds, blood work, and an MRI later she told me I didn’t have a uterus. Which really, at 17, didn’t bother me. But women with MRKH don’t really have a vagina either. “Vaginal dimple,” they say, “2-7 centimetres”. Which is really not something a girl who has a boyfriend and wants to go to university wants to hear. So I went to Toronto to visit a MRKH specialist, Dr. Blake at Sunnybrook in Toronto. Dr. Blake used to work at Sick Kids and has seen actual cases of MRKH before. My main concern was, as I mentioned, the whole lack of vagina thing. Really there are only three options open (that I’ve found) for women with this problem; surgery, dilating, or just leave it be and never really have sex. Now Dr. Blake, with all her experience, recommended the dilating.
The plan is for me to start this next week and I am honestly…afraid. I’m 18 years old and it … HURTS when I try to put my finger in my vagina. It’s all very discouraging.
Do you have any advice?