On Our Side.

December 30, 2009 at 3:35 pm (The voice of MRKH: Esther Morris Leidolf)

The Missing Vagina Monologue and Beyond

This article offers a look at MRKH from many perspectives. It is written by a woman, Esther Morris Leidolf, who has been personally affected. By bringing a voice to the condition, she gave me a lot of insight and I hope it will do the same for you…

There will be more to come.

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A New World.

December 30, 2009 at 3:11 pm (My Story.)

My Goals

Ive never written anything like this before nor have I ever been so open about my life as this. I guess I should start out by saying that my purpose in blogging is to increase awareness about MRKH in Canada and mainly, to reach out to those affected by this condition. My own experience with MRKH has motivated me to try and seek out others who share in my own experience and who wish to hear of another’s experiences. Doctors diagnose us but that is just about as far as it goes. There is little, if any, emotional or psychological support to accompany such a hefty label, therefore, I think we must create our own support.  Since this condition only affects 1 in 5000,  I have been advised that blogging may be the easiest and best way to reach those who may be interested in starting peer support not only in the Ottawa area but also on a national level. Since I want to make this as interactive as possible, I would like to welcome those of you who are personally affected by MRKH or who have been touched by someone with this condition to share your thoughts.

A word on the organization of my blog. Ive organized this site so that I can add my personal anecdotes while also providing you with the facts that I have found regarding MRKH. My main interest is the psychological implications of this condition on the newly diagnosed individual so the articles I post will be most relevant to that. If there is enough of interest, I can also provide medical research.

About my personal experience.

It has taken me a long time to come to terms with my fate, if you will. I was diagnosed with MRKH at 15, an age where everything is confusing as it is. Add to that a label which means you will always be different and my world was turned on its head. My experience began with my GP who was very cold to say the least. She didnt really understand what the problem was with being 15, fully developed but without any signs of a period. I was already beginning to feel like a freak sitting in that office. I guess the best thing she ever did for me was to refer me to my current gynaecologist. This is when everything changed…

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